“Blake has had the toughest fight of his life and one nobody should have to go through”.
Blake was taken ill in February 2018 and spent 5 months in Sheffield Children’s Hospital, he was then transferred to The Children’s Trust in Surrey for further rehabilitation. He returned homein September 2018.
He has been diagnosed wtih a very rare condition called ANE (Acute Necrotizing Encephalpathy.
Mum was told he had a stomach virus and was sent home from the doctors.
But Blake only got worse during the next two days, and on the second night after being sent home became violently sick.
The next morning, on February 1, Mum called for an ambulance and he was rushed to Hull Royal Infirmary. The thought he had dehydration from the stomach virus.
Blake became so weak he could not even hold his own head up and could hardly speak. He lost his sight and became unreponsive.
“Then in the early hours of the morning he was violently sick and became really droopy so we called for an ambulance. We thought it was dehydration at first but on the way to hospital he appeared to be losing his sight. It was as if he was looking right through us. By the time we got to the hospital he could not move, see or hear and we knew there was something seriously wrong.”
He just began to deteriorate. The first thing was he began to slur his words. Then he started acting like he couldn’t see. Then he was completely unresponsive.
He deteriorated so quickly he began to have seizures, so he was sedated and put into an induced coma. On February 2, Blake was transferred to intensive care at Sheffield Children’s Hospital and put on life support. Numerous tests were carried out on him and he was put into isolation after it was shown he had Flu B – the cause of Acute Necrotizing Encephalopathy. He was later diagnosed with the condition, which is so rare there are only 150 cases documented globally, mainly in Asia. The condition happens when the body’s defences turn against themselves and attacks, causing swelling in the brain and spinal cord. Mum, who remains at her son’s bedside, said: “We are absolutely devastated”.“Before all this he was a perfectly happy little boy. He was really bubbly and cheeky and loved to play outdoors. He absolutely loves animals, they are his favourite.