#ANEawareness Day – July 31st

Join the global movement to shine a light on Acute Necrotizing Encephalopathy (ANE) — a rare but devastating brain disease that strikes without warning.

🚨 Why It Matters

ANE often begins like a common viral illness — fever, cough, fatigue. But in many cases, it quickly escalates to life-threatening neurological symptoms like:

  • Double vision
  • Loss of coordination
  • Vomiting
  • Extreme drowsiness
  • Seizures

Too often, these red flags are missed. Patients are misdiagnosed. Families are left in the dark. Lives are changed forever.

🧠 What You Should Know

  • ANE can be genetic or non-genetic — and genetic cases can recur.
  • It’s most often triggered by viruses like influenza, COVID-19, measles, and more.
  • It affects previously healthy children and progresses rapidly.
  • Bilateral thalamic lesions on MRI are a key diagnostic clue.
  • Survivors often face lifelong challenges: cognitive delays, cerebral palsy, vision and speech impairments.
  • Early diagnosis and treatment can save lives.

📣 How You Can Help

On July 31st, take action:

  • 📲 Share our flyers, videos, and posts on social media
  • 💬 Talk to friends and family about ANE
  • 👩‍⚕️ Encourage doctors to look deeper when viral symptoms don’t add up
  • 🧬 Advocate for genetic testing when ANE is suspected

🌐 Get Involved

Together, we can raise awareness. Together, we can save lives.