
#ANEawareness Day – July 31st
Join the global movement to shine a light on Acute Necrotizing Encephalopathy (ANE) — a rare but devastating brain disease that strikes without warning.
🚨 Why It Matters
ANE often begins like a common viral illness — fever, cough, fatigue. But in many cases, it quickly escalates to life-threatening neurological symptoms like:
- Double vision
- Loss of coordination
- Vomiting
- Extreme drowsiness
- Seizures
Too often, these red flags are missed. Patients are misdiagnosed. Families are left in the dark. Lives are changed forever.
🧠 What You Should Know
- ANE can be genetic or non-genetic — and genetic cases can recur.
- It’s most often triggered by viruses like influenza, COVID-19, measles, and more.
- It affects previously healthy children and progresses rapidly.
- Bilateral thalamic lesions on MRI are a key diagnostic clue.
- Survivors often face lifelong challenges: cognitive delays, cerebral palsy, vision and speech impairments.
- Early diagnosis and treatment can save lives.
📣 How You Can Help
On July 31st, take action:
- 📲 Share our flyers, videos, and posts on social media
- 💬 Talk to friends and family about ANE
- 👩⚕️ Encourage doctors to look deeper when viral symptoms don’t add up
- 🧬 Advocate for genetic testing when ANE is suspected
🌐 Get Involved
- Follow us on https://www.facebook.com/ANEInternational/ and Instagram (@aneinternational)
- Visit our website to read real stories and learn more about ANE
- Watch & share awareness videos from our YouTube channel @ANE-international
Together, we can raise awareness. Together, we can save lives.