ANE in the Media

It is not often that ANE is featured in any newspaper, television or magazine articles, here we present a few from around the world. As the links may be removed at any time, please let us know if one is not working for you. Thank you.

📢🚨🆕📰 News just released to coincide with #ANEawareness Day 2025

New data from the Journal of the American Medical Association shows an unusual rise in cases of a rare and potentially deadly brain disease in kids. The condition is usually triggered by the flu.
🎤NBC News’ Erika Edwards reports on what doctors are saying about the uptick in cases and what symptoms to look out for.
#AcuteNecrotizingEncephalopathy
You can read the new medical data here – https://jamanetwork.com/journals/jama/article-abstract/2836871

Deciphering the structure of nuclear pore complex piece by piece

The implications of this research are potentially huge. Not only is the NPC central to the operations of the cell, it is also involved in many diseases. Mutations in the NPC are responsible for some incurable cancers, for neurodegenerative and autoimmune diseases such as amyotrophic lateral sclerosis (ALS) and acute necrotizing encephalopathy, and for heart conditions including atrial fibrillation and early sudden cardiac death.

11-year old Windsor girl battles rare 'one in a million' brain illness brought on by H1N1.

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‘Our miracle’ Iowa child with severe brain damage stemming from flu gets clear brain scan

Mother loses appeal to keep daughter alive.

The Court of Appeal upheld a High Court ruling that a girl with brain damage should be allowed to die. Doctors treating Pippa Knight at London's Evelina Children's Hospital said life-support treatment should end.

First Case Report of Acute necrotizing Encephalopathy associated with Covid-19.

Little girl with life-threatening illness goes under the sea for a wish come true.

Climbing frame appeal for "cheeky' Jacob, 3, who fought off rare brain infection.

'It was like reliving a nightmare": Calgary boy hospitalized by same condition that led to sister's death 18 years earlier.

Eltern von Silas aus Dingelbe wollen anderen Familien helfen

Nicole Jordan-Holze und Achim Holze aus Dingelbe stellen eine Webseite in
Gedenken an ihren Sohn Silas zusammen, auf der sie auch Hilfestellung geben.

Click Here

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Special students and their extraordinary families. Alunos especiais e suas famílias extraordinárias.

Family of St Helens Park baby Elora overwhelmed by public support.

The photo all parents need to see: Girl, 3, is left fighting for her life and unable to walk, talk or eat after doctors misdiagnosed a FLU virus as gastro

Two-year-old Lucy DeLuis, who died from flu, inspiration for world-first research..

The West Australian – Monday 28th October 2019.

Two-year-old girl Lucy DeLuis, who died from flu, inspiration for world-first research

Mum ‘grieving for son, 6,who can’t eat, sleep or talk after flu.

Hull Daily mail – 22 October 2019.