Welcome to ANE International

Bienvenue chez ANE International

Bienvenidos a ANE Internacional

Bine ati venit la ANE International!

Welkom bij ANE internationaal

Welkom by ANE Internasionaall

Nau mai haere ki tenei Roopu mo te Ao ko te ANE

Selamat bergabung di ANE International

ANE international mein aapka swagat hai

Tervetuloa kansainväliseen ANE-ryhmään!

Willkommen bei ANE international

Acute Necrotizing Encephalopathy is a rare type of brain disease that occurs following viral infections. Typically, influenza is the leading trigger, followed by HSV6 and other viruses such as coxsackie and enteroviruses. ANE usually occurs in early childhood, although adolescent and adult cases have been reported. It has the susceptibility to be recurrent in patients who have specific gene variants. ANE was first proposed by Professor Masashi Mizuguchi in 1995 and has slowly gained more recognition worldwide as cases and research are published. ANE International is an initiative that began in 2016 by parents of children affected by ANE. Our goal has foremost been to support and inform all families who are diagnosed with ANE no matter the patient’s age or nationality. Second to that is our wish to support research any way possible and to spread among the general population & medical communities, knowledge of ANE.

Fate whispers to the Warrior  “You cannot withstand the storm”

and the Warrior whispers back ” I am the storm”

International Acute Necrotizing Encephalopathy Awareness Day July 31st 2018

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How to get Involved

 ANE is an extremely rare disease which is not typically listed in most National Rare Disease databases. Please assist us if your country has not yet listed ANE by sending a request to the organization. Or contact us with the organization’s details and we will request it for you. To help raise awareness seek out how you can be involved in Awareness Days for Brain Injury, Encephalitis and Rare Disease.