Welcome to ANE International
Bienvenue chez ANE International
Bienvenidos a ANE Internacional
Bine ati venit la ANE International!
Welkom bij ANE internationaal
Welkom by ANE Internasionaall
Nau mai haere ki tenei Roopu mo te Ao ko te ANE
Selamat bergabung di ANE International
ANE international mein aapka swagat hai
Tervetuloa kansainväliseen ANE-ryhmään!
Willkommen bei ANE international
Acute Necrotizing Encephalopathy is a rare type of brain disease that occurs following viral infections such as the flu. It typically appears in early childhood, although adolescent and adult cases have been reported. It has the susceptibility to be recurrent in patients who have specific gene variants. ANE was first proposed by Professor Masashi Mizuguchi in 1995 and has slowly gained more recognition worldwide as cases and research are published. ANE International is an initiative that began in 2016 by parents of children affected by ANE. Our goal has foremost been to support and inform all families who are diagnosed with ANE no matter the patient’s age or nationality. Second to that is our wish to support research any way possible and to spread amongst the general population & the medical communities, knowledge of ANE.
Fate whispers to the Warrior “You cannot withstand the storm” and the Warrior whispers back ” I am the storm”
What Is ANE?
International Acute Necrotizing Encephalopathy Awareness Day July 31st 2018
How to get Involved
ANE is an extremely rare disease which is not typically listed in most National Rare Disease databases. Please assist us if your country has not yet listed ANE by sending a request to the organization. Or contact us with the organization’s details and we will request it for you. To help raise awareness seek out how you can be involved in Awareness Days for Brain Injury, Encephalitis and Rare Disease.