Our Butterfly Angel – Raegan

The one I adore

    Love you forever and ever more

Aug 9 1999 – Feb 10 2011

Momma’s Angel – LJ (The Fat Man)

I’d choose you; in a hundred lifetimes, in a hundred worlds, in any version of reality.

I’d find you. And I’d choose you

March 29, 2016 – May 17, 2017

Sweet little girl Anahi

Your life was short but forever you will be in my heart.

Feb 23, 2017 – June 3, 2018


I have fought the good fight, I have finished the race, I have kept the faith.

Feb 12, 2002 – Jul 11, 2019


My Little Best Friend, I will miss you forever and ever

Apr 10, 2014 – Mar 3, 2018 


Little Bear

July 30, 2018 – June 18, 2019

In Loving Memory of All ANE Warriors.

   Our Most Precious Angel – Sebastian

Since I met you I knew you were not of this world. The Light of your eyes, your soft skin and your radiant smile showed me what it looks like to be an angel


Aug 16 2014 – Feb 12 2017

For M

Zolst Attila

Chosen too soon to return, Wished we’d had more time

 – June 16, 2017

Tiny Dancer, You Lived An Amazing Life!

Alina Michelle

April 18, 2015 – March 20, 2019

We will always love you Rafael.

Pray for us from Heaven

May 29 2009 – July 10 2019

We love you so, so much my boy

Daniel Gregory Hope


Jan 11 2016- April 16, 2018

Our Shining Star Forever

       Until we meet again.

Our Angel – Kian

February 13th 2016


      There will never be a day that goes by that we do not think of you

Jan 23 2007 – Jan 20 2013

Our Beautiful Capreece

Her meaningful, special life gave to us & everyone else she touched something precious.


My Precious Jewel Lillian

She meant everything to me, and I can’t wait to see (and smell) her again!

Dec 27 2002 – Jan 29 2004


Lil Princess Keyoni

AUGUST 15, 2014 ~ APRIL 2, 2019

 Sofia – Our Little Angel

We will meet you again our sweetheart

Dec 13 2013 – May 24 2019

We would also like to recognize other families that have lost ANE warriors worldwide.

There are many cases in medical literature; time may heal and some families often do not wish to revisit a disease that has caused them so much pain.

Other families due to privacy and/or language barriers, we have no way of reaching out to.

If you have a loved one that you would like us to recognize, please do not hesitate to contact us.

We would like to thank our wonderful friend Mara Pianosi for the beautiful artwork.