Most countries have national organisations for Brain Injury, Cerebral Palsy, vision issues and any other disabilities a patient may have. We encourage you to use their resources and connect with them for support. Although not an Encephalitis, many ANE families have used the facilities of The Encephalitis Society in the UK. With most outcomes being the same for ANE and Encephalitis, their fact sheets and other information services are excellent. Below are some of the resources families have found helpful.
Around the World
On Facebook/Chinese Organisation for Rare Disorders
Please contact us if you have found an Organisation you have found helpful and would like us to list.