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We need your help!

ANE is an extremely rare disease which is not typically listed in most National Rare Disease databases.

Please assist us if your country has not yet listed ANE by sending a request to the organization. Or contact us with the organization’s details and we will request it for you. To help raise awareness seek out how you can be involved in Awareness Days for Brain Injury, Encephalitis and Rare Disease.

Are you a medical lab?

Let us work with you and find volunteers to study RANBP2 mutations.

Are you a medical student?

Work with our group to accumulate facts about the ANE experience of our families. It’s an excellent opportunity to learn about an ultra rare disease and assist us.

Are you a medical professional that have experience with ANE?

Share your experience, papers and insight with us.

You can email us at: ANEInternationalFamilies@gmail.com