#ANEawareness

#ANEandUs

ANE in the Media

It is not often that ANE is featured in any newspaper, television or magazine articles, here we present a few from around the world. As the links may be removed at any time, please let us know if one is not working for you. Thank you.

Mother loses appeal to keep daughter alive.

The Court of Appeal has upheld a High Court ruling that a girl with brain damage should be allowed to die.

Doctors treating Pippa Knight at London’s Evelina Children’s Hospital said life-support treatment should end.

First Case Report of Acute Necrotizing Encephalopathy Associated with Covid-19

Little girl with life-threatening illness goes under the sea for a wish come true.

Climbing frame appeal for "cheeky" Jacob, 3, who fought off rare bran infection

'It was like reliving a nightmare': Calgary boy hospitalized by same condition that led to sister's death 18 years ealier.

Eltern von Silas aus Dingelbe wollen anderen Familien helfen

Nicole Jordan-Holze und Achim Holze aus Dingelbe stellen eine Webseite in
Gedenken an ihren Sohn Silas zusammen, auf der sie auch Hilfestellung geben.

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Special students and their extraordinary families. Alunos especiais e suas famílias extraordinárias.

Family of St Helens Park baby Elora overwhelmed by public support.

The photo all parents need to see: Girl, 3, is left fighting for her life and unable to walk, talk or eat after doctors misdiagnose a FLU virus as gastro

Eastbourne parents hold fundraiser to show support for children’s charity after baby girl became critically ill.

“Sophie was a healthy 11-month-old baby until she was struck down with flu, and developed a rare brain condition, Acute Necrotising Encephalitis, which has left her with severe brain damage and multiple disabilities”.

Two-year-old Lucy DeLuis, who died from flu, inspiration for world-first research..

The West Australian – Monday 28th October 2019.

Two-year-old girl Lucy DeLuis, who died from flu, inspiration for world-first research

Mum ‘grieving for son, 6,who can’t eat, sleep or talk after flu.

Hull Daily mail – 22 October 2019.

#ANEawareness

#ANEandUs

ANE in the Media

Mother loses appeal to keep daughter alive.

First Case Report of Acute Necrotizing Encephalopathy Associated with Covid-19

Little girl with life-threatening illness goes under the sea for a wish come true.

Climbing frame appeal for "cheeky" Jacob, 3, who fought off rare bran infection

'It was like reliving a nightmare': Calgary boy hospitalized by same condition that led to sister's death 18 years ealier.

Eltern von Silas aus Dingelbe wollen anderen Familien helfen

Your Title Goes Here

Special students and their extraordinary families. Alunos especiais e suas famílias extraordinárias.

Family of St Helens Park baby Elora overwhelmed by public support.

The photo all parents need to see: Girl, 3, is left fighting for her life and unable to walk, talk or eat after doctors misdiagnose a FLU virus as gastro

Two-year-old girl Lucy DeLuis, who died from flu, inspiration for world-first research

*** Workshop on RanBP2/Nup358 and ANE – See http://www.palazzolab.com/ for details. ***

* Workshop on RanBP2/Nup358 and ANE – See http://www.palazzolab.com/ for details. *