Epidermolysis Bullosa is a debilitating skin disorder and life sentence for children and families who live with the pain day in day out.  This is Brillstein manager Andrea Pett-Joseph, using her contacts in the world of celebrity to bring awareness and funds to her son’s rare disease.  More info at : http://ebresearchfoundation.org/

***

Remember to browse through the website at www.aneinternational.org, we have a fountain of information for you to discover. Our first International ANE Awareness day will be July 31st, 2018